- Adam Day
Learn about a boy who passed away after a fight with Fanconi anemia. Find out how to make a donation to the Fanconi Anemia Research Fund.
http://www.adam.interactiveinc.com/
- Alex and Matt Pearl
Personal stories of two children fighting Fanconi Anemia.
http://www.alexandmatt.com
- B Positive, Inc.
A charitable organization providing assistance to children with Fanconi Anemia within the St. Louis and St. Charles Missouri metro areas.
http://www.bpositiveinc.com
- Diamond-Blackfan Syndrome
A definition, epidemiology, clinical features, complications, investigations and management.
http://www.icondata.com/health/pedbase/files/DIAMOND-.HTM
- Family Village: Fanconi Anemia
Features contact information for the Fanconi Anemia Research Fund. Links to personal accounts and areas where one can learn about the disease.
http://www.familyvillage.wisc.edu/lib_fanc.htm
- Fanconi Anaemia
A UK site dedicated to sufferers of this condition, it explains about what FA is, the treatments, medical information and a kids area.
http://www.fanconi-anaemia.co.uk
- Fanconi Anaemia
A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin.
http://www.cancerindex.org/ccw/fanconi.htm
- Fanconi Anemia Research Fund
To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide.
http://www.fanconi.org/
- Fanconi Canada
Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families.
http://www.fanconicanada.org
- Hope for Henry
This web site is dedicated to helping people learn more about what a special young man Henry is and to educate everyone about the disease he is fighting, Fanconi anemia.
http://www.hsg.org/
- Yahoo! Groups: blackfan
Open mailing list for Diamond Black Fan Anemia sufferers.
http://groups.yahoo.com/group/blackfan/
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