- Acyanotic Congenital Heart Defects
Describes PDA, coarctation of the aorta, ASD, VSD, AVSD, AS, PS, tetralogy of fallot, TGA, TAPVR, truncus arteriosus, tricuspid atresia, and HLHS.
http://www.mamashealth.com/Acyanotic.asp
- CHD Awareness Day
The Children's Health Information Network has brought global attention to the dreaded problem of Congenital Heart Defects by a co-ordinated effort from parents and families of CHD victims.
http://www.tchin.org/aware.htm
- CongenitalHeartDefects.com
Information, resources and support for families and individuals dealing with congenital heart defects. Definitions of CHDs and medical terms, extensive list of support groups and hospitals.
http://www.congenitalheartdefects.com
- Fontan Operation
Devoted to explaining this procedure, used to treat complex birth defects of the heart like hypoplastic right and left heart syndrome and single ventricle.
http://www.FontanOperation.com/fontan.htm
- Grown Up Congenital Heart Patients Association (GUCH)
Provides support and advice to adults and teenagers born with CAD. Offers information sheets on topics such as pregnancy, insurance and careers, a message board and quarterly newsletter.
http://www.guch.demon.co.uk
- Heart Disease Online
A collection of articles on the different kinds of congenital heart defects, including their treatment by surgery, written in simple, non-technical language.
http://www.heartdiseaseonline.com
- Hearts Of Hope
Stories of children born with a very serious heart defect known as hypoplastic left heart syndrome (HLHS). Help in finding relevant information and links, especially in Australia.
http://www.heartsofhope.iinet.net.au/
- HLHS Information
Treatment options for newborns with Hypoplastic Left Heart Syndrome. Includes questions to ask the hospital, surgeon, and insurance company.
http://www.hlhsinfo.homestead.com
- Mamas Health
Contains a lot of information about acyanotic congenital defects.
http://www.mamashealth.com/acyanotic.asp
- MedicineNet
Detailed look at congenital heart disease, such as the causes, symptoms, types and treatments.
http://www.about-heartdisease.com
- Miami Children's Hospital
Department of Cardiovascular Surgery provides a list of surgeries performed along with actual pictures and a lot of information about each. A form on-site to ask questions or give comments.
http://www.pediatricheartsurgery.com
- Resources from California State University
Very extensive list of congenital heart diseases with links to sites dealing with that particular disease. Information to help parents and provide support.
http://www.csun.edu/~hcmth011/heart/
- The Children's Heart Society
Information about this non-profit, volunteer based support group, dedicated to helping families affected by Congenital Heart Disease/Defects.
http://www.childrensheart.org/
- The Children's Hearts Fund
Information about the organization dedicated to finding a cure for the deadly orphan disease protein losing enteropathy (PLE). Also covers events, FAQs and links to other resources.
http://www.colinscure.com
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