- Cute Petite Chic - A Cystic Fibrosis Web
Basic information with good description of sweat test, memorial page for a girl lost to CF at age 9, details of her last days and link to give in her memory through Great Strides. http://www.cuteptchic.com - NPR : Laura Rothenberg Remembered
Reporter and producer Joe Richman first met Laura Rothenberg when he began recruiting young people to contribute to his "Radio Diaries" series. Rothenberg died March 20, 2003 at age 22 after a lifelong struggle with cystic fibrosis, but left behind a wealth of insights about her own mortality and a life worth living. Listen to "My So-Called Lungs" -- the documentary featuring Rothenberg's diary entries -- first heard on NPR in August 2002. http://www.npr.org/display_pages/features/feature_1199420.html |