- Ectodermal Dysplasia Society
Information about the organization as well as the ED condition. Includes links, news articles and contact details.
http://www.ectodermaldysplasia.org/
- National Foundation for Ectodermal Dysplasia
ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.
http://www.nfed.org/
- NORD: Ectodermal Dysplasias
Offers synonyms, a general discussion and resources.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ectodermal%20Dysplasias
- The Andy Fund
Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.
http://www.andy.org.mx
- The CaF Directory
Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing.
http://www.cafamily.org.uk/Direct/e14.html
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