- Carolina Fragile X Project
A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them. http://www.fpg.unc.edu/~fx/ - Conquer Fragile X, Inc.
Creating a virtual research center in Israel to find a cure. http://www.conquerfragilex.org - Familyvillage
Links to places to talk about Fragile X. http://www.familyvillage.wisc.edu/lib_frgx.htm - Fragile X Association of Australia
Information on this disease, medical aspects, education, references, contacts and what's new in Australia http://www.ozemail.com.au/~fragilex - Fragile X Association of Southern California
Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation. http://www.fraxsocal.org - FRAXA Research Foundation
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PLEASE NOTE: you have our link but description is wrong. Please update to the following:
Non-profit organization run by parents. FRAXA accelerates progress toward effective treatments and ultimately a cure for Fragile X, by directly funding the most promising research. http://fraxa.org - FRAXA Research Foundation Home Page
Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's. http://www.fraxa.org/ - Online Support Group
Support group for Family's who are dealing with Fragile X Syndrome. http://groups.yahoo.com/group/fragilex/ |