- Children of the Moon
A portal site that provides an online community for children, teens and adults with xeroderma pigmentosum. http://www.moonchildren.com - NORD - Xeroderma Pigmentosum
Offers alternative names, a general discussion and resources. http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Xeroderma%20Pigmentosum - Pediatric Database
A definition of xeroderma pigmentosum with the epidemiology, pathogenesis, clinical features, investigation and management. http://www.icondata.com/health/pedbase/files/XERODERM.HTM - Xeroderma Pigmentosum
An article about this disorder in English and Italian along with some images. http://digilander.libero.it/camdic/XERODERMA%20PIGMENTOSUM.html - Xeroderma Pigmentosum Society
Resource for information about the disease and about the not-for-profit support organization devoted to supporting patients and families and promoting research. Links, contact information, XP Society news about fund raising events and the unique Camp Sundown program. http://www.xps.org - XP Support Group
Xeroderma Pigmentosum Support Group - a UK charitable Trust founded in 1999 by parents of a child with XP, to support patient families in the UK and promote research related to this rare, genetic disorder. http://www.xpsupportgroup.org.uk |