- I Have Scleroderma
Web rings with personal stories of people affected by this disease and links to more information. http://www.ihavescleroderma.com/ - Juvenile Scleroderma Network, Inc.
Details about this organization who is working to provide educational programs about JSD, and to help children and their families to gain a better understanding of this disease. http://www.jsdn.org - Scleroderma
Basic information about this disease, stories from site visitors, pictures, voting booth and treatments. http://homestead.com/Scleroderma/Scleroderma.html - Scleroderma Support Site
Website dedicated to people suffering from scleroderma. http://sclerodermasupport.com/support/digest - Scleroderma Clinical Trials Consortium
Information about this international organization which is dedicated to finding a better treatment for this disorder. Includes current studies and a newsletter. http://www.sctc-online.org - Scleroderma Discussion Board
Read the posts or post a message for those who have or who are interested in this disorder. http://pub59.ezboard.com/fsclerodermadiscussionboardfrm1 - Scleroderma from A to Z
A major resource for medical and support information, with 200+ pages and 800+ links. Symptoms, treatments, clinical trials, and worldwide support group listings. http://www.sclero.org/index.html - Scleroderma Lung Study
A research study into the treatment of pulmonary alveolitis with cyclophosphamide seeking patient volunteers. Brief details of this US study for patients and doctors. (May 2000) http://sclerodermalungstudy.medsch.ucla.edu/ - Scleroderma Society
Offers support and information. Includes an introduction, news and a message board. http://www.sclerodermasociety.co.uk - Scleroderma Society of Canada
A non-profit society raising awareness of and funding for research and a cure. Good factual information about this disease. http://scleroderma.ca - Surviving Scleroderma
An extensive resource for medical information, overview of disease and news from related organizations. A large service of support to visitors worldwide since 1996. http://www.sclerodermasupport.com/ - The Scleroderma Foundation
National nonprofit health organization with 14,000 members, dedicated to a three-fold mission of support, education, and research to help fight this challenging autoimmune disease. http://www.scleroderma.org |