- Anencephaly
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/health_and_medical/disorders/anencephaly_doc.htm - Anencephaly Awareness
Information about anencephaly, such as possible causes and future prevention. http://www.angelfire.com/mb/jessicasjourney/info.html - Anencephaly Fact Sheet
Definition, epidemiology, pathogenesis, clinical features, investigations, and management of anencephaly from a healthcare workers perspective. http://www.angelfire.com/mn/michaelashope/anencephalyfact.html - Anencephaly Information
Personal stories, photos, tips for creating memories, advice on taking photographs, and tips for midwives. [Information in English, German, French, and Dutch] http://www.anencephalie-info.org/ - Anencephaly Net
An internet hub providing facts about anencephaly. Includes fact sheets and links for pre-natal support, information, policy, grief support, and memorial sites. http://www.anencephaly.net/ - Anencephaly Support Foundation
Non-profit support organization with information, personal stories, and resources for families, parents, and medical professionals. http://www.asfhelp.com/ - Health Link MCW
Provides an article about Anencephaly. http://www.healthlink.mcw.edu/article/921383913.html - Yahoo! Groups: Anencephaly
Global Health Network support group open to anyone affected by anencephaly. http://groups.yahoo.com/group/anencephaly/ |