- Chrissy & Friends
Non-Profit organization that has support groups for children and teens with epilepsy and parents of children with epilepsy support groups in the NYC area. http://www.chrissyandfriends.org/ - Epilepsy Bereaved
Information about SUDEP and other epilepsy deaths. Bereavement support and information on SUDEP research. Free booklet for young people with epilepsy. http://dspace.dial.pipex.com/epilepsybereaved/ - Epilepsy Support
Maintained by someone with the disease, this site offers support, advice, and useful links. http://www.epilepsysupport.org.uk/ - Epilepsy Surgery Club on Yahoo!
Details about this group which is for those who have thought of (or had) having brain surgery or Vagus Nerve Stimulator surgery. Registration required. http://groups.yahoo.com/clubs/epilepsy_surgery - Epilepsy-l: Epilepsy support group
An E-mail based support group for people with epilepsy and those who care about and for them. http://home.ease.lsoft.com/Archives/Epilepsy-L.html - People Incorporated Epilepsy Services
A guided independent living experience designed to prepare adults diagnosed to live and work on their own. Includes services, history, gallery, opportunities and FAQs. http://www.orgsites.com/mn/epilepsy - Yahoo! Clubs: Epilepsy Support Group
Supportive club to help those with this disease. Includes free membership, message boards and chat room. Also joining instructions. http://groups.yahoo.com/clubs/epilepsysupportgroup - Yahoo! Groups
Yahoo! Directory: As of the entry date, there are 103 epilepsy groups on Yahoo! http://dir.groups.yahoo.com/dir/Health___Wellness/Support/Diseases_and_Conditions/Epilepsy? - Yahoo! Groups : adultswithepilepsy
This club is for adults (those 18 and older) to discuss their experiences with epilepsy, including causes, treatment and coping skills. http://groups.yahoo.com/group/adultswithepilepsy/ - Yahoo! Groups : childhoodepilepsy
This mailing list is intended to support parents and other care-givers of children diagnosed with a form of epilepsy. http://groups.yahoo.com/group/childhoodepilepsy/ - Yahoo! Groups : Dating-and-Married-Life-with-Epilepsy
The purpose of this group is for people to discuss issues that come up when they are dating and when they are married. How do we handle different situations? Are we embarrassed? How do our children handle it? Are people scared of us? etc.... http://groups.yahoo.com/group/Dating-and-Married-Life-with-Epilepsy/ - Yahoo! Groups : doosesyndrome
For parents of children who have, or who may have Myoclonic-Astatic Epilepsy, otherwise known as Doose Syndrome, a rare, severe, intractable epilepsy of early childhood. http://groups.yahoo.com/group/doosesyndrome/ - Yahoo! Groups : epilepsy
For people with or know someone with Epilepsy. A place to talk, share stories, and for moral support. All ages welcome. http://groups.yahoo.com/group/epilepsy/ - Yahoo! Groups : Epilepsy-Kids
Epilepsy-Kids offers support and information for parents of children diagnosed with any form of epilepsy. http://groups.yahoo.com/group/epilepsy-kids/ - Yahoo! Groups : epilepsycircle
This support group is for all who have an interest in epilepsy, whether it is for you, a family member, a friend, pupil or a child that has a seizure disorder or epilepsy. http://groups.yahoo.com/group/epilepsycircle/ - Yahoo! Groups : epilepsycured
We are people sharing information on curing / preventing epilepsy - seizures. This is a support group for patients, parents, children, familly members ... anyone and everyone. http://groups.yahoo.com/group/epilepsycured/ - Yahoo! Groups : epilepsypals
a club for anyone that has epilepsy, their parents, friends and family. to meet new friends, share info for children to perhaps find penpals. all ages welcome. http://groups.yahoo.com/group/epilepsypals/ - Yahoo! Groups : epilepsysupport4kids
This group is a support group for kids with epilepsy, kids interetsed in improving their condition by natural means. http://groups.yahoo.com/group/epilepsysupport4kids/ - Yahoo! Groups : Epilepsy_Advocates
Our group is made up of people that suffer from Epilepsy, parents of children with Epilepsy, people whom have previously had Epilepsy and friends of those suffering from Epilepsy. http://groups.yahoo.com/group/Epilepsy_Advocates/ - Yahoo! Groups : Epilepsy_Support_And_Education
We are a growing community to help bring people with epilepsy from all corners of the world to share experiences, thoughts, and provide information. All ages are welcome and you don't have to be epileptic to join. http://groups.yahoo.com/group/epilepsysupportandeducation/ |