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Home : Conditions and Diseases : Neurological Disorders : Muscle Diseases : Muscular Dystrophies : Organizations
LINKS:
  • Cell Therapy Research Foundation
    Not-for-profit medical research foundation working to find a treatment for muscular dystrophy and other genetic diseases through cell/gene therapy. Site describes treatments and clinical trials.
    http://www.celltherapy.com/
  • Logan Paige Foundation for Myotonic Dystrophy
    Dedicated to educating potential parents about Myotonic Dystrophy and genetic testing. Information about fundraising, both for research and to assist people who cannot afford testing, news, stories, and about Logan Paige.
    http://www.loganpaige.org/
  • Muscular Dystrophy Association of Australia
    Extensive information on the range of disorders, research information and many links to onsite publications. Also provides an international support network with a chat service dedicated for use by the worldwide MD community.
    http://www.mda.org.au/
  • Muscular Dystrophy Association of USA
    Voluntary health agency providing information and supporting research into neuromuscular diseases, including Muscular Dystrophy.
    http://www.mdausa.org/
  • Muscular Dystrophy Ireland
    Voluntary organization in Ireland which provides support for people with muscular dystrophy and their families.
    http://www.mdi.ie/
  • Parent Project Muscular Dystrophy
    Parent Project Muscular Dystrophy is a not-for-profit organization founded in 1994 by parents of children with Duchenne and Becker Muscular Dystrophy.
    http://www.parentprojectmd.org
  • Parent Project UK
    Parent Project UK is a charity set up by parents and supporters of boys with Duchenne and Becker Muscular Dystrophy that promotes research to find a cure or viable treatments.
    http://www.ppuk.org
  • The Muscular Dystrophy Campaign (UK)
    A UK-based charity which funds medical research and support services for people with neuromuscular conditions. Site contains detailed information about duchenne, becker and many other conditions. Sections on education, care, physiotherapy, research and ways to help raise funds.
    http://www.muscular-dystrophy.org/
 
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