- Becker Muscular Dystrophy Information Exchange
This web site serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease. http://www.beckermusculardystrophy.org - DMD Forum
An International forum providing support and resources for families and individuals facing the challenge of Duchenne Muscular Dystrophy. http://www.dmdforum.org/ - DMD Information
Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options. http://www.angelfire.com/band/teja/infofram.htm - DMD Options
Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy. http://www.dmdoptions.com - DMD Pioneers Yahoo Support Group
A Yahoo support group, mailing list, and message archive for teens and adults with Duchenne Muscular Dystrophy. Family, caregivers, and friends of those affected by DMD are also encouraged to participate. http://groups.yahoo.com/group/dmdpioneers/ - Dr. John R. Bach - The DMD/SMA/ALS Doc
This site provides information about Non-Invasive Ventilation (NIV) and pulmonary care. Utilizing NIV as an alternative to a tracheostomy decreases hospitalization and increases quality of life. http://www.doctorbach.com/ - FSH Friends
This site is a resource for individuals and families interested in Facioscapulohumeral Muscular Dystrophy. http://www.infowest.com/personal/a/alan/FSH/Friends2/ - HealtHub
A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations. http://www.healthubs.com/dystrophy - MDA Ride For Life
Pennsylvania Ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, May 3-4, 2003. http://www.mdarideforlife.org/ - Muscular Dystrophy
A short information sheet on MD compiled by NINDS, the National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/health_and_medical/disorders/md.htm - Muscular Dystrophy Campaign
Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK. http://www.see-search.com/musculardystrophycampaign.htm |