- Kolten's Tuberous Sclerosis Page
Kolten's story about living with this disease. The daily seizures that took over his life and the amazing surgery that gave it back to him.
http://www.Kolten.homestead.com/Kolten.html
- NORD: Tuberous Sclerosis
Offers alternative names, a general discussion and further resources.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Tuberous%20Sclerosis
- Pediatric Database
A definition of tuberous sclerosis, followed by the epidemiology, pathogenesis, clinical features, investigations and management.
http://www.icondata.com/health/pedbase/files/TUBEROUS.HTM
- Team Tamara
Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates.
http://www.team-tamara.org
- TSCTalk
Mailing list and discussion boards for patients and professionals.
http://www.tsctalk.com
- Tuberous Sclerosis
A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/health_and_medical/disorders/tuberous_sclerosis.htm
- Tuberous Sclerosis Association
"Supporting sufferers, promoting awareness, and seeking the causes and best possible management of Tuberous Sclerosis." Full of resources and information on Tuberous Sclerosis, plus contact details.
http://www.tuberous-sclerosis.org/
- Tuberous Sclerosis Fact Sheet
Developed by the National Institute of Neurological Disorders and Stroke (NINDS).
http://www.ninds.nih.gov/health_and_medical/pubs/tuberous_sclerosis.htm
- Tuberous Sclerosis Hub
A brief definition of, followed by links to overviews, research articles, case reports and images.
http://www.healthubs.com/tuberous
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