Cystinosis Foundation Includes brochures, FAQs, medical exchange, research, and a message forum as well as details about the organization and its events, conferences and fund raising. http://www.cystinosisfoundation.org
Cystinosis Research Network Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources. http://www.cystinosis.org
