Stickler Involved People Medical information, networking, news and updates. http://www.sticklers.org/
Stickler Syndrome Outreach - Oregon Reaching out to those in Oregon who are affected by Stickler's Syndrome. http://oregonsticklers.homestead.com
Stickler Syndrome Support Group Information and support for people affected by Stickler Syndrome. UK-based, but with international links. http://www.stickler.org.uk